life and times of a family with a little man with designer genes
A Little Something Extra
Monday, May 5, 2008
Urgent Update from Jennie
6:45pm - Micah is still in surgery. The valve repair took longer than expected. They had to put him back on the heart/lung bypass machine twice. They've given him extra medications to help his lungs because they are not responding well. But they've now taken out his canula's so they believe that he will not need the bypass again. They might need to keep his chest open tonight. He's apparently quite swollen. We haven't seen him since we handed him over at 8:45am. It's been a long day.
Welcome to our family blog. We have three boys: Nathan (7), Micah (4), and Matthew (3). Nathan is our energetic, sports fanatic first-born. Micah is our charming little guy, who happens to have an extra 21st chromosome (aka Down syndrome) and multiple associated health issues. Matthew is our big-boy-wanna-be. I started this blog the day after we found out that Micah has designer genes (Trisomy 21, aka Down syndrome). We've been through a lot of ups and downs (and a lot of time in the hospital), but God is faithful and continues to show His love toward us.