Since we don't have enough going on these days, we decided to add another trip to Milwaukee for Micah to see an endocrinologist (sense the sarcasm?). Seriously. I was looking through some paperwork from the NICU at TC and saw that he had an elevated thyroid level at his last bloodwork drawn before he went back to Milwaukee for his g-tube. No one ever mentioned that to me. And thyroid issues are fairly common in children with Down syndrome.
Early last week at his interim pediatrician's appointment (congrats, Dr. R., on baby boy #3, but your timing for maternity leave could have been better :-) ), I asked when they would test his thyroid level again (not knowing that he had elevated levels while in the NICU). He told me they would test it again at 6mos and one year. But then I found this information in his paperwork and called him on Friday. He said to bring Micah in on Friday evening for a blood draw. He got the results Saturday morning and called the on-call endocrinologist at Children's who said they should see Micah early this week. Nice. I'm glad I noticed it. But who wouldn't have noticed it. That's why lab reports show "in range", "L", or "H" by the results. Strange how the multiple H's weren't noticed by anyone else. Maybe strange isn't the best word. Maybe crappy is a better word. I'm tempted to say irresponsible, but I hate to point fingers.
Anyway, Micah is now on synthroid. Because he doesn't take enough medications...
Sorry for the negative ranting. Maybe I'm a bit stressed about our upcoming week.
Suspense by Rachel Dylan
5 weeks ago