life and times of a family with a little man with designer genes
A Little Something Extra
Wednesday, October 15, 2008
New tube works!
(this photo was taken at the Buddy Walk on 9/6. I'll post more info and photos of that sometime soon)
So far, so good. Micah's new tube appears to be well-placed downstream so nothing is backing up to his stomach. This is very good news.
Our happy boy seems to be taking a hiatus, though. Since leaving the hospital, Micah is much less likely to issue smiles to people he doesn't know. He wanted nothing to do with his speech therapist today. I guess it's understandable that he wouldn't be incredibly trusting of people. He's had a rough few weeks. He had some periods of discomfort today and I don't know the cause. I think he's becoming more of a mommy's boy too. He is crying when I leave his room and he doesn't often do that in the evening. He only smiled at Grammie yesterday when he heard my voice. Yikes. I hope he gets back to himself soon.
Please pray that I would be able to lovingly get him back on track with his therapies. He is rather weak and protests "work," but he needs to get back to exercise too.
Welcome to our family blog. We have three boys: Nathan (7), Micah (4), and Matthew (3). Nathan is our energetic, sports fanatic first-born. Micah is our charming little guy, who happens to have an extra 21st chromosome (aka Down syndrome) and multiple associated health issues. Matthew is our big-boy-wanna-be. I started this blog the day after we found out that Micah has designer genes (Trisomy 21, aka Down syndrome). We've been through a lot of ups and downs (and a lot of time in the hospital), but God is faithful and continues to show His love toward us.