life and times of a family with a little man with designer genes
A Little Something Extra
Friday, January 25, 2008
Return of the NG
Looks like I posted too soon this morning. After I posted, I came to Micah's room and found that they had put an NG feeding tube in already. He still has residual bile in his stomach that hasn't gotten down through his intestines. Not sure what surgery is going to say about that yet. But I was very sad to see another tube in his nose this morning. And I had hoped to request that if they did put in another tube, could they please put it through the other nostril to balance out his lopsided nose (the drainage NG tube he had in for 2 weeks really yanked his nose to the side). But no, I didn't have time to request that because they put it in last night, of course in the same nostril.
Welcome to our family blog. We have three boys: Nathan (7), Micah (4), and Matthew (3). Nathan is our energetic, sports fanatic first-born. Micah is our charming little guy, who happens to have an extra 21st chromosome (aka Down syndrome) and multiple associated health issues. Matthew is our big-boy-wanna-be. I started this blog the day after we found out that Micah has designer genes (Trisomy 21, aka Down syndrome). We've been through a lot of ups and downs (and a lot of time in the hospital), but God is faithful and continues to show His love toward us.