Sorry, no Down syndrome post today. Very tired. But I wanted to use today's post to say how thankful I am for such supportive family, friends, and prayer warriors from our church. Our family has been through a lot since we moved here less than 3 years ago.
Micah had his last visit with his ophthalmologist in Madison yesterday. We went to say farewell to the staff at the NICU this morning (one of the nurses referred to chubby bubby as "cube baby" LOL). Micah had his last appointment at the feeding clinic in Milwaukee last Friday. I actually cried on my way home because we've spent a crazy amount of time there in Micah's 21 months of life (and a couple of days before that). They know him. They know what he's been through. They've seen the progress he's made. They feel a strong sense of "ownership" of his health and his progress.
What I realized after that is that one of the hardest parts of leaving is that we are leaving everyone who has walked through this entire journey with Micah with us (in person, anyway), from prenatal diagnosis to preterm labor to birth to NICU (here to Milwaukee to here to Milwaukee) to intestinal surgery to heart surgery to feeding tubes to oral aversion to another hospitalization to another surgery to many trips to MKE for tube changes... We're going to a place where no one knows. It takes a long time to build up community in a new place. Don't we all want to feel like we're known?
We're leaving on Saturday. I'm very much looking forward to being in the same city as Mark. And I'm looking forward to beginning the next chapter in our lives... mostly. But we're leaving Mark's parents. We'll be farther from my family too.
But I'm thankful for having the opportunity to be here for almost 3 years. I'm thankful for the dear friends we have made here. I'm thankful for the countless prayers that were offered up by our church family, most of whom had never met us before Micah was born (and some we were never blessed to meet). And I'm thankful that Micah was born here, or we wouldn't have met some of the wonderful families here who also have a child with designer genes.
Suspense by Rachel Dylan
1 week ago