I'm almost hesitant to post this, but I've been doing bolus feeds for Micah since Friday. You might wonder what that means. Well, until very recently, Micah was receiving his feedings continuously for 19 hours/day (through his feeding tube, which was recently changed to a G-tube from a GJ-tube). A bolus feed is more like a meal. For him, that's about five ounces. And on Friday I tried giving him that volume over a very short period of time (15 minutes).
Today, I gave him FIVE bolus feeds so he does not need an overnight drip feed tonight. This is the first night since May '08 that he hasn't received a feeding overnight, except when he's been sick and we've wanted to give him a break. He also ate orally twice today (about 3 ounces each time).
Oh, and at Feeding Clinic in Milwaukee on Friday, he took an ENTIRE jar of baby food (bananas, in case you're curious). Show off!
Micah has a lot of difficulty with any foods that are more liquid than pudding thickness. We'll keep working on it. But even pureed carrots need some rice cereal added in order to thicken it up.
One of these days we'll be able to get rid of the feeding tube. It could be a year or two. But it's so wonderful to see progress!