This morning I had my first appointment with my OB since receiving the diagnosis. I'm measuring (by fundal height) about 2-2.5 weeks ahead. That will likely go up due to increasing amniotic fluid due to baby not "consuming" as much. That's another story in and of itself that I won't bore you with, except to say, "And you thought I was HUGE when I was pregnant with Nathan!" Anyway, Dr. E. said that he would get the ball rolling by calling the Fetal Concerns Program at Children's Hospital of Wisconsin (CHW, in Milwaukee). And wow, the ball is now rolling.
I received a call later this morning from Andrea at CHW. She will coordinate our "introduction" to CHW, which includes appointments with a perinatologist (who will deliver our baby), a pediatric surgeon (may or may not be the one fixing baby's duodenum), a neonatologist (from the NICU), a lactation consultant (some babies with T21 have difficulties with nursing, and it could be a bigger problem since he won't be able to eat for a few days after he's born), and a child life specialist (a counselor who will work with us on communicating with Nathan), and a tour of both hospitals (labor & delivery, NICU, CHW). Andrea is great. She suggested we not do it all in one day if we don't have to because it can be information overload. But with up to 2 hours of transit time each direction, it makes more sense for us to try to do it in one day. So she set off to schedule our day in Milwaukee. It only took her a few hours to call me back with a complete schedule from 11am-4pm on Tuesday, Nov. 6th. Impressive.
Suspense by Rachel Dylan
5 weeks ago