Micah's surgery to insert his g-tube is scheduled for Monday at 9:00am. We are leaving for Milwaukee at 11:00am Sunday. They say we'll be there 3 days after surgery and that he'll be discharged from there.
Micah's heart is definitely getting weaker. He's sleeping A LOT and isn't too interested in eating most of the time (though when he engages in his feeding, he does very well, so it's not that he's not capable of the suck/swallow/breathe thing). It's pretty scary, actually, thinking about your son going in for another surgery when he's weaker than he was when he was born.
I'm bummed that he's getting a g-tube. We really wanted to avoid that. But I'm even more bummed that he NEEDS a g-tube. It means his heart is too weak to eat enough. Our biggest fear is that we'll miss out on some critical months of mental development while he's not strong enough to engage in life.
I'll find out tomorrow whether I'm able to get into the Ronald McDonald House. If not, I'll be crashing with my future sister-in-law. Mark is planning to meet me down there to bring Micah home, but we'd rather save his time off for after Micah comes home.
1 month ago