Today was officially Micah's due date, though my c-section was scheduled for 1/31. He entered the world back on 1/5. Here are some new photos:
Oma finally got a break from Nathan duty!
Nathan visited Micah by looking through a window to the family room (I was able to wheel his crib down to the room)
Micah's crib (pun intended)
We have a "Care Conference" coming up later this week where we will meet with the neonatologist, nurses, social worker, genetic counselor, speech therapist, physical therapist (?), and I don't know who else. It's sort of like a merging of the minds to make sure we're all on the same page with expectations. We can invite anyone we want (I might want to ask if Micah's cardiologist or a PA could be there). It's tough to know which of the four whammies are affecting his stamina most: prematurity, duodenal atresia, heart defect, or Trisomy 21. [By the way, I hate that we have that fourth one the most.]
Micah continues to improve gradually in his feedings. He tires fairly easily and eats best following a bath (he's super alert then). He weighs 7lbs 6oz. They've increased his milk intake to 66 cc's every 3 hours (60 cc's is equivalent to 2oz). I'm looking forward to our Care Conference to find out everyone's opinion on whether Micah is going to be able to take this sort of volume orally or if we need to get comfortable with the idea of a G-tube. His neonatologist was not ready to give in to that and wants to hold out almost at all costs. But he needs to come home sometime.
I'm very tired and therefore quite edgy. Mark has been sick with the flu since Friday so he's run-down too. Nathan's eyes are looking a bit sunken this evening and I just pray he's not getting sick.