life and times of a family with a little man with designer genes
A Little Something Extra
Friday, February 13, 2009
Matthew is coming home on Saturday. But there's a catch... he has to be attached to a monitor for over two weeks. Huge bummer! Matthew had another apnea session at 1:30am today. Today is Friday the 13th, after all. He had gone 72 hours without one. Ugh. But we're very excited to be bringing him home tomorrow. Our Valentine's Day treat!
Welcome to our family blog. We have three boys: Nathan (7), Micah (4), and Matthew (3). Nathan is our energetic, sports fanatic first-born. Micah is our charming little guy, who happens to have an extra 21st chromosome (aka Down syndrome) and multiple associated health issues. Matthew is our big-boy-wanna-be. I started this blog the day after we found out that Micah has designer genes (Trisomy 21, aka Down syndrome). We've been through a lot of ups and downs (and a lot of time in the hospital), but God is faithful and continues to show His love toward us.