Thursday, July 31, 2008
Monday, July 28, 2008
Friday, July 25, 2008
Nathan has figured out what's going on with these trips to Milwaukee. He was fairly naive for a while, but on the way this morning he said, "I don't need to go doctor. I fine. I just fine." He was fine in the waiting room (toys, you know), but as soon as the nurse called his name he dropped to the floor on his tummy and cried. He recovered quickly, though, and was a really good boy. He did a bit better this time after he woke up with an IV line in his hand (compared to last time when he kept yanking on it). But he cried out A LOT on the way home. It's tough because he's completely exhausted because I have to wake him up so early in the morning to drive down there. But he's napping now, so all is peaceful here.
Micah's trip to Milwaukee yesterday was good. We need to get his bloodwork done to check his thyroid level again but I didn't feel like doing that yesterday. The nurse practitioner asked me a bunch of questions about Micah's development. She said that he's at 6 months for social development. He's way behind on gross motor skills (yep, knew that one). She kept saying how wonderful it is that he communicates back and forth with eye contact. Yes, that's our social little boy.
We also met with a speech pathologist. He had some new ideas for exercises. He also explained a bit about why Micah has an oral aversion. He thinks that because the tongue is the first part of the digestive system, he doesn't like anything touching his tongue because it initiates the process that is painful for him. He was pleased that Micah tolerates me messing with his cheeks (what, I HAVE to pinch his cheeks? oh, that's too much work for a mommy! :-) ) and that I can put my finger in his mouth as long as I don't touch his tongue (if I do, he gags, and we don't want that to happen often because then he might not let anything into his mouth).
Micah's last weight check put him at 14lbs 4 oz. He's gaining more than an ounce a day. He's chunking out big time. Oh, and the pediatrician doesn't seem concerned about the hyperinflated lung, so we're just supposed to watch for symptoms like wheezing or difficulty breathing. Whew. One less thing to worry about.
Wednesday, July 23, 2008
After the ENT appt, I decided to stop by the cardiology clinic to ask about a cough that Micah has had lately. I figured it would just be a nurse listening to make sure there's no fluid building up (he's only been off his diuretics for 2 weeks). The cardiologist was in and she listened as well. She opted to put Micah back on one of his diuretics for a bit and she ordered a chest x-ray. Now that Micah is 6 months old, he has to be upright for the chest x-rays. Next time he gets one I'll bring my camera. It's like a baby torture chamber. He had to sit sort of on a bicycle seat with his hands in the air and two semi-circular cones around his body and a strap behind his head. Needless to say, Micah didn't enjoy that very much.
Anyway... the cardiologist just called me (yes, at 9pm) because she just looked at the x-rays. It appears Micah's lungs are hyper-inflated, primarily the right one, which is probably why his liver is low (that was one of the reasons that she ordered the chest x-ray in the first place). She said his heart looks good, so something else must be causing the lung issue. He might be having some sort of aspiration (likely when he's refluxing) or he could have asthma, though she said he didn't sound asthmatic.
So tomorrow I get to call the pediatrician and ask what she'd like to do about the lung thing.
Tomorrow (Thursday) Micah sees the endocrinologist in Milwaukee for follow-up for his hypothyroidism. Since we're going anyway, we have an opportunity to see a speech therapist who is part of the feeding team at Children's. It makes sense to take advantage of this opportunity since we can't get Micah into the feeding clinic until November. Then on Friday, I take Nathan to Milwaukee for another laser treatment for his monster birthmark. That's never fun. He doesn't recover well from the anesthesia. Please pray he doesn't get sick on the way home.
Sunday, July 13, 2008
6month check-up – Micah weighs 13lbs 3oz and is 24” long. This puts him on the “normal” weight chart for the first time in the 1st percentile and bumps him up to the 26th percentile on the Down syndrome chart. He’s a couple of check-ups behind on his shots, but we’ll get him caught up by one year.
Heart stuff – Micah saw his cardiologist last week. She doesn’t want to see him for FOUR MONTHS. Wow. And he’s now off all of his heart meds except one. His blood pressure is good, his oxygenation is 100%, and his respiratory rate is good. He’s still retracting with his breathing, but that should tone down a bit over time as his body realizes it doesn’t have to use so many muscles to breathe. At his next appt he will have an echocardiogram to assess how well his new valves are working (in a nutshell, his surgery was to patch two holes and create two valves from one big hole).
Eating – Micah doesn’t eat anything by mouth. Yes, that’s really hard. It’s hard enough for a woman who wants to nurse her baby to find out that she can’t (for whatever reason). But tack onto that the inability to feed your baby with a bottle, and it just, well, stinks.
Gastrointestinal – This appears to be Micah’s biggest hurdle at this point. We’ve been told to “reset” our expectations regarding Micah’s feeding tube (per his GI doctor: “I’m fairly confident that Micah will be able to get rid of his feeding tube someday… I just don’t know whether than will be when he’s 1 ½, 2, 3 or 4 years old.”). Ouch. That really hurt. And that’s basically why I haven’t updated the blog on Micah’s health lately. We have to draw gas out of his stomach (through the g-port) because it gets distended and causes him to urp. He still has reflux, but he’s on a high dose of Prilosec to limit the level of acid so that it doesn’t harm his esophagus.
Duodenum – Still not sure if it’s working. His j-tube feeds him into his jejunum, which means that the majority of his digestion is done after the duodenum. The GI doctor told us to start trying an ounce a day into his g-tube to see if he’s able to cope with food going through there, then we up to two ounces, and then three ounces. If he tolerates that, then we might be able to start solids soon. There might be an issue with a high volume going through his g-tube because of the j-tube sort of blocking the path downward. I guess we’ll find out. But he’s been able to digest all of his saliva and stomach juices, so he thinks this should work.
Feeding tube – I have a love/hate relationship with this thing. Logically, it needs to be skewed more toward “love,” because without it, I’m not sure whether our little guy would be growing or even living. But he has to be connected to a feeding pump for about 21 hours/day and he has a multi-port tube sticking out from his clothing. A friend of mine’s daughter asked about it at church a few weeks ago, and I told her that, “He needs it because he doesn’t know how to eat.” This little girl’s sweet brother, Will, chimed in and said, “Yet.” I almost cried.
* That Micah would tolerate the feedings through his g-tube so that he can start solids
* That Micah would not develop an oral aversion to solids like he has with liquids
* That Micah would get more comfortable and able to deal with the pressure in his belly
* That Micah’s neck strength would increase and he would use his arms more
* But most importantly, that we would truly rest on God’s strength: “I can do all things through Christ who strengthens me.”
Saturday, July 12, 2008
No, I don't make a habit of letting him get too worked up. He was just in one of those moods one afternoon where nothing was making him happy. Believe it or not, it happens to Micah. I'm not complaining, though, because he is a generally content baby.
Thursday, July 10, 2008
Wednesday, July 9, 2008
Our photographer, Heidi, is doing a "Mini Session" at Pierce Park in Appleton this Saturday, 7/12, from 9:30-4:30. For $50, you get 30 minutes of time with Heidi, a CD of edited images from the session, and a custom mini accordian album. Heidi's candids are fantastic. She will basically follow your kids around the park for 30 minutes to catch their true personalities. For additional photos, see her website: http://hjselchphotography.com/. If you're interested, email Heidi at hjselchphoto at sbcglobal dot net, or call her at 920-279-2376 to set up a 30-minute time slot.
(I got sick of the old template as a background so I'm temporarily switching to this one with the dots until I can find a different template that I like better)