life and times of a family with a little man with designer genes
A Little Something Extra
Wednesday, July 23, 2008
Pray for Ethan
Please pray for baby Ethan. His daddy works with Mark. Ethan was born with a serious heart defect called Tetralogy of Fallot and pulmonary atresia. Amazingly, Ethan was big enough and strong enough to have a one-repair situation. Many babies with this defect require multiple surgeries. And he was eating like a champ before his heart surgery so he flew through recovery and was released from the hospital one week after his surgery. But he's back in the hospital with a staph infection in his bloodstream. He's going into surgery today to see if the infection is around his heart. They expect he'll be in the hospital for 4-6 weeks. Please keep Ethan and his family in your prayers.
Welcome to our family blog. We have three boys: Nathan (7), Micah (4), and Matthew (3). Nathan is our energetic, sports fanatic first-born. Micah is our charming little guy, who happens to have an extra 21st chromosome (aka Down syndrome) and multiple associated health issues. Matthew is our big-boy-wanna-be. I started this blog the day after we found out that Micah has designer genes (Trisomy 21, aka Down syndrome). We've been through a lot of ups and downs (and a lot of time in the hospital), but God is faithful and continues to show His love toward us.