Not much time to post today (I still want to post about my weekend in Nashville, but that will have to wait). But we have an important prayer request.
Micah's congestive heart failure is still not "under control." His tachypnia (rapid breathing) seems to be worsening and the meds are not helping. Though surgery *might* be more effective a few months from now (there's some research showing that low weight really doesn't impact the outcome as much as initially thought), Micah's cardiologist believes that sooner is better than later for him to get his open-heart surgery (OHS) to repair his AV Canal defect. She also thinks that his heart issues could be part of the reason that he is having such crazy digestion issues (so far, Nutramigen is not helping and he was screaming almost all night).
1. a surgeon in Milwaukee to agree that Micah is ready for surgery
2. an opening in the surgeon's schedule in early May
3. the measles "outbreak" in Milwaukee would be contained so that there is no delay in scheduling "non-emergent" surgeries at Children's Hospital (there are currently 3 known cases of measles and one case of rubella in Milwaukee... it's HIGHLY contagious)... by the way, the cardiologist wants Micah to continue getting some breast milk for the immunities... that doesn't jive with what the gastroenterologist recommended... who wins?
4. Micah would continue to be healthy (he currently is a bit stuffier than normal... please pray he's not getting a cold)
I'll post about this again in a couple of days when we will hopefully hear from the schedulers in Milwaukee. Just a reminder... if you'd like to be alerted when I update the blog, you can receive an email the night after I post by entering your email address on the right column. =>
1 month ago