This feeding situation with Micah is going to send me to the funny farm (can one still say that or is it not PC?). After a week on Nutramigen, Micah's ability to tolerate a feed is getting worse, not better. He's screaming during every feed (and the majority of the night for the past two nights), unless I just sneak 3 ounces into his tube while he's sleeping. That's really not a good option, because he needs to continue sucking from a bottle (that ability is waning as well). And last night he had pink-tinted residual when I vented his tube. It only happened that one time, but yuck. The on-call pediatrician said that happens sometimes with babies with g-tubes. More information that would have been helpful to know earlier, though I still think it was probably a good move to get him the g-tube.
So, we've been advised by the gastroenterologist to change Micah's formula to EleCare (similar to Neocate). But neither of those is covered by our Rx insurance because they're "available" over-the-counter. Never mind that the product description from the manufacturer says, "for use under medical supervision." Let the appeal process begin (just what I need... one more thing to do). I find it hard to believe that it will cost us more to feed Micah than it does to feed Mark. That's crazy. Anyone out there work for Abbott Nutrition who could get us free samples? :-)
Quick sarcastic addition to this post: Doesn't the statement "It's not covered as a prescription because it's available over-the-counter" mean that you should actually be able to find it OVER A COUNTER somewhere?
Suspense by Rachel Dylan
5 weeks ago