So much running through my mind today, I just don't know where to start. First off, please pray for our day in Milwaukee (rescheduled for tomorrow). It's going to be information overload. We met with the chief of pediatric surgery last week Friday while he was up here for the day doing consults. He was very informative and we are planning to go the Milwaukee route. I also met with the new perinatologist here in our local area to discuss how we can manage the remainder of my pregnancy with as few trips to Milwaukee as possible. We'll have an ultrasound with her in 3 weeks (at 29 weeks), another at 32 weeks, then weekly until delivery (likely at 38 weeks).
We're going to try to get a tour of the Ronald McDonald House tomorrow morning before our appointments at the hospitals. After our day tomorrow we should be put on the wait list for the House. We've been trying to figure out how to best balance taking care of Nathan and doing what's best for the baby. We think that might be having Nathan and one of our moms stay with me in the House to minimize the amount of time I'm away from him. According to the surgeon we met on Friday, we should expect the baby to be in the hospital for 3-4 weeks aftger surgery (though it could be as few as 10 days if things go very well). We're planning to tour the NICU up here sometime soon to assess whether we might be able to have the baby transfered up here for recovery after surgery.
I've made some contacts locally via email and we hope to meet some families in person soon. One of those moms has a blog with a post that hit so close to home I can't read it without crying. I couldn't say it better myself, so I'll let you read what Melanie wrote. Her sons are 2 years and 4 months apart in age (exactly how far apart our sons will be if this baby makes it to term). And aren't her boys adorable!?
I'll update more after our trip to Milwaukee.
1 month ago