Micah had his one-year well visit today and he weighed in at 18lbs 5oz. Wow! That's great for him. He's tracking right on the 50% percentile for weight on the Down syndrome growth chart (that's basically where he's been since his heart surgery, barring the recovery period following his nasty GI bug back in early October). He just made it on the weight chart for a "typical" kid at one year (2nd percentile). He's not on the height chart for "typical", but at 27" inches, he's almost 25th percentile on the Down syndrome height chart. He's the opposite of our skinny minnie Nathan (who's 25th percentile on weight and 50% percentile on height). But he does have a big head! He's almost 90th percentile on the Down syndrome chart and he's 23rd percentile on the "typical" chart.
After one week on an antibiotic, it appears Micah still has an ear infection in one ear so we're changing antibiotics. He has been congested for almost two months now. The antibiotic probably won't help the congestion. After another week, if he still isn't sleeping well, I'm probably going to ask for a referral to an ENT to figure out what's going on inside this kid's nose. We've had the humidifier running every night in his room and spraying saline in his nose every time he wakes up (which is between 3-5 times every night). It's getting rather old and tiring. And he's not exactly happy having a stuffy nose all the time.
We have a referral to a private occupational therapist now, since Micah's OT through county services has been deployed to Iraq. The county is looking to hire someone to temporarily replace Becky, but until then we'll go with an OT over at the hospital. It's important to me that we make sure Micah is continuing to use both of his hands equally given the short fingers on his left hand.
Suspense by Rachel Dylan
5 weeks ago