The verdict is in. After the CT scan, lots of phone tag, voicemails, and conversations with doctors (both Micah's and my own personal expert, Colleen), the powers that be have decided to treat Micah with a 14-day course of antibiotics (clindamycin, to be exact) to treat for staph. The CT indicated that he "might" have an infection under/around his tube site. We took pictures of the redness around the area before beginning the treatment. Micah's pediatrician will look at it when the antibiotic course is finished. Micah is scheduled for a follow-up with an immunologist on July 6th. This was meant to just be an immunology work-up to check for any sort of immunity concerns (he can't be tested prior to then because of the IVIG treatment he received when he was in septic/toxic shock). But the immunologist (who is an infectious disease doc) will also look at his tube site. He will also be seen by his GI doc on June 25th and she'll take a good look at it too.
Meanwhile, I received a call from the pulmonologist, Dr. C, who does the sleep studies (he's also the critical care doc who discharged Micah on 5/2). He was great. He basically did a phone consult to eliminate the need to see Micah for an evaluation prior to the sleep study. He also said that he prefers to wait at least 6 weeks after a child comes home from the hospital to make sure they're back in their regular sleep habits. That would put us to mid-June. Frankly, I really don't want to add something else to the mix right now, so I'm delaying the sleep study until after the July 6th appointment with Imm.
Micah had an appointment with ophthalmology today. He sees Dr. B again in September. This was a check-up with the orthoptist who works with the ophthalmologist. She noted Micah is crossing his left eye up close and his right eye at distance, which she said was good because he's using both eyes. She doesn't recommend patching at this point (which is good). We're still likely dealing with a repair in the fall.
P.S. Micah is eating a little more these days. And he slept through the night the past 3 nights. Wahoo!
Suspense by Rachel Dylan
1 week ago