Sorry for the lack of creativity. I will do a Mother's Day post soon... maybe. I also need to post pictures of our vacation in early April. Micah got sick 48 hours after we arrived home on Saturday the 10th, spent the whole week sick, then ended up in the ER that Saturday (you know the rest).
Since coming home from the hospital on Sunday May 2nd, Micah has not been sleeping well. After five days of that, I took him to the pediatrician on Friday. We both guessed UTI (urinary tract infection) or withdrawal from the methadone he received in the hospital (ironically to reduce withdrawal symptoms from the other meds he was on during the first week). The only way to accurately diagnose the UTI would be to put in a catheter (which would cause major irritation, which he clearly was already experiencing).
So, she opted to run some blood cultures (results still not back) and check a CBC. The CBC (complete blood count) indicated a bacterial infection so she gave him a shot of rocephin on Friday and again on Saturday. He's still not sleeping through the night, but this weekend was better than last week so we hope we're on the right track.
She also pointed out that bacteria can live on plastic so it would be a good idea to replace his MIC-KEY button (his feeding tube). I had asked about replacing the button when Micah was in the hospital but was told it wasn't important. Hm. Anyway, we changed his button on Saturday and the area around his tube site looks better today than it has in months. Hm.
Micah is on an 8-day course of an antibiotic to treat for staph and the UTI, just in case. I should have stopped his Miralax last Friday after the rocephin shot (you mommies of constipated little ones know EXACTLY what I mean here).
He's still only taking a very abbreviated nap and not sleeping through the night. Please pray that he gets more comfortable soon. Please also pray that he would get his strength back. He used to beat Matthew up the stairs and he still can't climb them all the way. His countenance is still off a bit too. And he's had a couple of purple experiences (he's oxygenating fine, so it's more of a temperature regulation problem). But we're blessed to have him home!
Suspense by Rachel Dylan
1 week ago