life and times of a family with a little man with designer genes
A Little Something Extra
Tuesday, October 2, 2012
31for21: SUDS walk
The Step Up for Down Syndrome walk was held in St. Paul on Sunday. It was a spectacular day: 80+ degrees in MN is not common. I didn't do much in the way of organizing our team this year. Mark was out of town. And the walk always comes soon after Nathan's birthday.
But we did manage to assemble a good group in orange.
Micah's church helper, Susie, joined us this year, along with the owner of our favorite local toy store and her daughter. And our pediatrician brought her family. Our neighbors came. And one of Nathan's good friends and his family.
But see this next photo for an example of why we love our district's inclusion preschool:
This is Micah with his friend, Cate. She's the tallest in the class. Yes, they're the same age. I was so excited when I heard from Cate's mom that their family would be joining us for the walk. How amazing!
It took a while for her to find us, but Micah's para from school came too:
We couldn't convince Batman to wear orange.
Micah had to take some breaks. And he spent at least the second half of the walk with the iPhone.
Remember Gracie? Her family had one of the largest groups at the walk. Gracie died five months ago. Here's a photo of Micah with Gracie's four-month-old brother, Mickey.
It was really hot. So a lot of ice cream was consumed.
All tuckered out
Thanks so much to everyone who walked and donated.
Welcome to our family blog. We have three boys: Nathan (7), Micah (4), and Matthew (3). Nathan is our energetic, sports fanatic first-born. Micah is our charming little guy, who happens to have an extra 21st chromosome (aka Down syndrome) and multiple associated health issues. Matthew is our big-boy-wanna-be. I started this blog the day after we found out that Micah has designer genes (Trisomy 21, aka Down syndrome). We've been through a lot of ups and downs (and a lot of time in the hospital), but God is faithful and continues to show His love toward us.