A Little Something Extra

Tuesday, January 26, 2010

Micah pulled Matthew down!

The rules-follower in me says that I should be appalled at Micah's abuse of his brother.

Allow me to describe the scene as there are no photos. Micah and Matthew were sitting and playing in the playroom. Matthew takes a toy from Micah, puts it on the train table, and stands up to play with it. Micah grabs Matthew's shirt, pulls him down, and grunts/growls at him. After I said a half-hearted "No, Micah," I turned around, smiled, and shared Micah's assertiveness with Mark.

Way to go, Micah. Um, don't pull your brother's shirt.

Friday, January 15, 2010

Haiti relief

My friend, Amy, at A Scrapbook of Sorts, has challenged her readers to blog about their efforts toward Haiti relief. She's giving $1 to Compassion for everyone who blogs about it and adds their name to her Mister Linky.

We have chosen to send money to Bethany Christian Services. They run two orphanages in Haiti. All of the children and staff are safe. But I'm certain they will have many more children to add to their homes soon. The director of one of those orphanages did an interview on the Today Show on Wednesday.

James 1:27 tells us, "Religion that God our Father accepts as pure and faultless is this: to look after orphans and widows in their distress and to keep oneself from being polluted by the world."

Please do what you can.

(As a side note to my readers who don't have the best impression of evangelical Christians, please know that most of us disagree with Pat Robertson's assessment of Haiti's situation.)

Tuesday, January 12, 2010

Video - Matthew walking

(to my email subscribers, you'll have to link through to the blog to see it)

A funny story about Matthew... Mark took the boys in for their flu booster shots in December. Micah cried (briefly, as always). Mark joked with the nurse that Matthew is so fat, he probably won't even feel it. Seriously... the child didn't even flinch!

Tuesday, January 5, 2010

Micah is 2 years old today!

Love this kid!!! Time flies... It's hard to believe it's been two years, but given the fact that we've had another baby since then who will be one in a month, I certainly hope it's been two years! :-)

My blog posts around the time of Micah's birth were random at best, or I would link to a specific post. But I should probably write Micah's birth story one of these days. Suffice it to say, January 5th 2008 did not go as planned. Micah was born early (34 1/2 weeks), following a long spell of pre-term labor due to his duodenal atresia (the first part of his small intestine was not connected to the second part, thus causing an overabundance of amniotic fluid). I was huge, even after my perinatologist had done two amnio reductions (draining a total of 2.5 liters of fluid out of the amniotic sac... I'll spare you the gory details).

I was about to get sent by ambulance to Milwaukee for the delivery, but my labor progressed too quickly. And it's a good thing I wasn't moved (I wrote about that a bit before). Micah was born via emergency c-section at 2:32pm. He was beautiful! I saw him briefly before he was taken to the NICU. The next time I saw him was about 3 hours later. He was "packed for transport" for his trip to Milwaukee, so I still couldn't hold him. It was then that I saw his left hand. It was really hard... learning about that, having only a couple of minutes with him, and then not seeing him for almost 3 whole days.

Enough about that. You'd rather hear about his life NOW, right? Micah has the most charming and engaging smile. His laugh is hysterical... sort of hoarse, maybe due to his tonsils being large? He snuggles right into your shoulder, almost like he melted into you. He gives kisses (by clicking his tongue rather than pursing his lips, but it's still sweet). He is very much a mama's boy, which is both honoring and overwhelming at the same time.

Micah has orthotics to give some support to his ankles now, and that necessitated a new shoe purchase. With his orthotics on, he needs a size 4 extra wide, which is Matthew's shoe size! See pic below for the shoes. They're really cute, like baby Doc Martens (think leather monkey boot, if you're familiar with Docs). They go a bit above his ankles.

Micah still receives about 90% of his nutrition through his feeding tube. He's taking small quantities of pureed baby food (stage 2 mostly) on a baby spoon. But he won't let any other item close to his mouth, including finger food or a cup. Even if he was taking in a huge volume of food orally, he couldn't go without the feeding tube because he will not allow fluids to pass his lips. We've been on the feeding tube journey for almost 2 years now. It stinks.

Micah is pulling to stand. He recently started moving his feet a bit more. I'm hoping to see him cruise the furniture more soon. He also recently started taking a few steps forward while holding (tightly) onto someone's hands. And just today, as he was standing holding onto my hand, he briefly and willingly let go. He was only able to stay standing for about 2 seconds before sitting down, but it's huge that he felt comfortable enough to let go (without me prying his fingers off my hand).

What have I left out? Just that this little boy brings a ton of joy to our lives. I will not say it's been an easy two years. And I'm still not in the camp of those who are actually glad that their child has Down syndrome (who knows... maybe I would be without all the medical junk... but maybe not then either... would I take away that extra chromosome if I could? Probably. Am I the only mom of a kid with designer genes who would? I'm pretty sure that I'm not, though expressing these feelings might get me blacklisted! Truthfully, though, I would really miss the amazing friends I've made in real life as well as in the blogosphere who share in our journey, and I'd miss out on some amazing life lessons that God has taught me and continues to teach me through Micah). I love this boy. And I wouldn't trade him, so don't ask. :-)

Happy birthday, my darling boy.

Saturday, January 2, 2010

Additional Christmas photos

For my Facebook friends, you saw these same photos yesterday. But for everyone else, here are some additional photos from Christmas morning.

Before he broke into the stash Micah just loves getting Nathan hugs
Sweet boy
The tradition is to put baby Jesus in the manger on Christmas morning.
Nathan with his favorite gift (a Leapster). Thanks, Granddad!
Fascinated by the ribbons
All three in a photo together! And all three got the biggest kick out of the busy ball popper.
Me and my boy!
Matthew simply was not going to be contained
But Nathan did everything he could to remove him from the temptations
Daddy and his baby
Size 2T jersey for our almost-11-month-old (thanks, Uncle Bill and Beth)