Ironic that our "anniversary" of Micah's diagnosis is in the month of October... Down syndrome awareness month. I'll never forget that call:
"I have the results of your amniocentesis and I have bad news for you. Your baby has Down syndrome. Do you have any questions?"
Couldn't think of any. And in retrospect, that was probably a good thing. Because I'm guessing the guy wouldn't have given me the most accurate information. He wouldn't have told me about early intervention. or reading ability. or prom king. or international speaker. or husband. or homeowner.
Those early days of the diagnosis were dark. really dark. We went though grief. "How do you launch a broken arrow?" was a question actually uttered in our house. Oh, how I wish I could go back to that couple and tell them that their son's smile would melt their hearts. that his hugs would melt completely into their chests. that he would teach them more than they ever wanted to know about themselves. that he would teach them more about God than any other human possibly could.
Pumpkin Patch 2018
6 years ago
3 comments:
Oh hello tears. I had a very similar experience and have very similar wishes about what the me now would say to the me then. Even though the word "embarrassed" isn't quite right, I am a little "embarrassed" at how little I knew then. How little I knew about how much Elijah was going to show me about love. Thanks for sharing, and I have to say, it is always so nice to hear your own feelings reflected in someone else!
You can't go back, but you are good about living forward as an advocate for children with downs syndrome.you are constantly educating, challenging, and inspiring others to live with compassion. That is a wonderful legacy!
You can't go back, but you are good about living forward as an advocate for children with downs syndrome.you are constantly educating, challenging, and inspiring others to live with compassion. That is a wonderful legacy!
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