tag:blogger.com,1999:blog-1755094655608073057.post133871803335806760..comments2023-06-20T04:49:23.539-05:00Comments on A Little Something Extra: Messy diaper achieved!Jenniehttp://www.blogger.com/profile/06617791426447246761noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-1755094655608073057.post-41344893856794392462008-01-26T14:22:00.000-06:002008-01-26T14:22:00.000-06:00jennie, Please cut your self some slack. it took m...jennie, <BR/>Please cut your self some slack. it took me a long time to deal with jacob's diagnosis. a lot of time,i was just in denial. it will get easier, but it is a journey that doesn't move in a straight line. the added stress of a 2 year old who knows how to push your emotional buttons must be overwhelming. remember that you can still wrestle with God, be angry or confused and still be a good mom/person. God knows that you are going to go through these things and although it may not feel like it now, He's holding you up. so when you want to cry...cry out to Him with your pain, anger, fears. I am thinking of you and praying for all of you. you will get through this season. love you. feel free to call if you want.<BR/>JoyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1755094655608073057.post-49737889421371880412008-01-25T13:52:00.000-06:002008-01-25T13:52:00.000-06:00Jennie-- you are doing great! If you didn't have ...Jennie-- you are doing great! If you didn't have ups and downs, it would be abnormal. you just had a baby with lots of needs, you are healing yourself from a surgery, you are separated from loved ones, you have a 2-year old-- it is not an easy set of circumstances. hang in there, and take some time for yourself, however you can do that-- after Nathan is in bed- do something nice for yourself! We love you and think of you dailyATLKraftshttps://www.blogger.com/profile/11890208314997493784noreply@blogger.comtag:blogger.com,1999:blog-1755094655608073057.post-35955338166364570582008-01-25T12:09:00.000-06:002008-01-25T12:09:00.000-06:00We are praying...and don't hold back your real fee...We are praying...and don't hold back your real feelings. Many of us who have been there are glad to see that others are dealing with it just as we did. The grieving process will be hard, but will get better with each day.Melaniehttps://www.blogger.com/profile/04597514092059155556noreply@blogger.comtag:blogger.com,1999:blog-1755094655608073057.post-59879924864498926742008-01-25T11:01:00.000-06:002008-01-25T11:01:00.000-06:00So glad Micah had his first poop. I know how impo...So glad Micah had his first poop. I know how important that is for his recovery.<BR/><BR/>As for the transport, Lil had her surgery in Madison, and once it got to the point where all she was working on was feeding, we were able to transfer her to the NICU at St. E’s in Appleton. Although the docs thought insurance would probably cover the ambulance transport, they didn’t see any reason why we couldn’t drive her ourselves, and that is what we did. Her PIC line was out, and all she had was an NG tube. But, seriously, we loaded her in our own car and drove her to Appleton. It was great to be able to sleep at our house and not RMH. <BR/><BR/>Maybe an option if you have trouble with insurance for the transport?Christinehttps://www.blogger.com/profile/10675504356785820156noreply@blogger.comtag:blogger.com,1999:blog-1755094655608073057.post-47986012343275556952008-01-25T11:00:00.000-06:002008-01-25T11:00:00.000-06:00Hi Jennie, I'm so glad I got to meet Micah! There...Hi Jennie, I'm so glad I got to meet Micah! There's something so wonderful about new, tiny babies. I think when I'm old & my kids are gone, I'll go volunteer to rock babies in the NICU or something.<BR/><BR/>Please don't feel bad about grieving over Micah having Down Syndrome! It's nothing to worry about. No one expects things are super easy for any of you right now, and please don't be afraid to ask for help if you need it. Or even just someone to lend an ear!Michellehttps://www.blogger.com/profile/04082807589185886275noreply@blogger.comtag:blogger.com,1999:blog-1755094655608073057.post-90730046021596566962008-01-25T10:58:00.000-06:002008-01-25T10:58:00.000-06:00Hi, I've been reading along. My daughter has DS an...Hi, I've been reading along. My daughter has DS and is 16 months old. She spent some time in the NICU too. Anyway, cut yourself some slack -- you certainly don't need to have it all together at this point! It would be strange if you <I>weren't</I> crying occasionally. Hang in there. <BR/><BR/>And congrats on the poop!Catehttps://www.blogger.com/profile/16248485766805270628noreply@blogger.comtag:blogger.com,1999:blog-1755094655608073057.post-69739153077245029882008-01-25T09:03:00.000-06:002008-01-25T09:03:00.000-06:00Jennie-Please don't beat yourself up. You are not...Jennie-<BR/><BR/>Please don't beat yourself up. You are not staying at home, you have a little boy with you (who is having his own issues!!), and you've been dealing a lot with Micah's medical issues. It took me a long time to come to grips with my son's diagnosis. It's perfectly natural to go through a grieving process. I would love to come visit you at Children's if you are up for it. If so, my email is kmwestcott@aol.com.<BR/><BR/>KristiAnonymousnoreply@blogger.com